Caregiver burden and coping strategies among family caregivers of patients with chronic kidney disease undergoing hemodialysis: A descriptive study
https://doi.org/10.52235/lp.v7i2.749
Keywords:
caregiver burden, chronic kidney disease, coping strategies, family caregiver, hemodialysisAbstract
Background: Chronic kidney disease is a progressive condition requiring long-term hemodialysis therapy and affects not only patients but also family caregivers involved in daily care. Continuous caregiving demands may lead to physical, emotional, social, financial, and care-related burdens, requiring adaptive coping strategies to sustain caregiving roles.
Objective: This study aimed to identify caregiver burden and coping strategies among family caregivers of patients with chronic kidney disease undergoing hemodialysis.
Methods: This descriptive quantitative study was conducted at Regional Hospital in Tarakan from December 2025 to February 2026. A total of 133 family caregivers of patients with chronic kidney disease undergoing hemodialysis were recruited using a total sampling technique based on predetermined inclusion and exclusion criteria. The Zarit Burden Interview was used to assess caregiver burden, while the Brief COPE was used to measure coping strategies. Data were analyzed using univariate analysis with Jamovi and presented as frequency distributions, percentages, medians, minimum values, and maximum values.
Results: Most respondents were adults, female, housewives, had a monthly family income of IDR 1,000,000–3,000,000, and were the patients’ children. The majority of caregivers experienced mild burden, accounting for 84 respondents (63.2%). The most dominant coping strategy was emotion-focused coping, with a median score of 24, a minimum score of 13, and a maximum score of 34. The most frequently used coping subscales were positive reframing, acceptance, and religion, each with a median score of 8.
Conclusion: Most family caregivers of patients with chronic kidney disease undergoing hemodialysis experienced mild caregiver burden and tended to use emotion-focused coping as their primary strategy. Regular caregiver burden screening, education on adaptive coping strategies, and psychosocial support should be strengthened within hemodialysis care services.
Downloads
References
Abebe, A., Arba, A., Paulos, K., Abera, W., Sidamo, T., Shiferaw, S., Abraham, Z., Baza, D., Nega, B., & Woldeyohannes, S. (2022). The Lived Experience of Primary Family Caregivers of Patients on Hemodialysis Treatment in Southern Ethiopia: A Phenomenological Study. International Journal of Nephrology and Renovascular Disease, Volume 15, 41–52. https://doi.org/10.2147/IJNRD.S353191
Al Harbi, F., Bin Khalid, L., Hinai, & Qadhi, A. A. (2025). Exploring the supportive care needs for people with chronic kidney failure undergoing hemodyalisis: A qualitative study. Lentera Perawat, 6(4), 776–784. https://doi.org/10.52235/lp.v6i4.596
Aneja, R. D., & Fatrida, D. (2026). Application of pursed-lip breathing to reduce fatigue in hemodialysis patients: A nursing case study. Lentera Perawat, 7(1), 27–36. https://doi.org/10.52235/lp.v7i1.630
Bunyamin, E. M. N. I. (2023). Hubungan Peran Family Caregiver Dengan Tingkat Kemandirian Activity Daily Living Pasien Paska Stroke. PREPOTIF: Jurnal Kesehatan Masyarakat, 7(1), 926-934.
Chu, S. Y., Ibrahim, N., Amit, N., Gafor, A. H. A., Ismail, R., Lee, K. W., & Siau, C. S. (2023). Interventions to Reduce Caregiver Burden Among Caregivers of Chronic Kidney Disease (CKD) Patients: A Scoping Review. Sage Open, 13(2), 21582440231178703. https://doi.org/10.1177/21582440231178703
Darussalam, M. & Adeana Putri. (2025). The Impact of Family Caregiver Burden on Stroke Patient Care Behavior. Healthy Behavior Journal, 3(1), 21–32. https://doi.org/10.30989/hbj.v3i1.1640
Faridah, V. N., Nursalam, N., Lestari, P., Suratmi, S., Juanita, F., & Aris, A. (2020). Determinants of the Caregiver Burden of CKD Patients Undergoing Hemodialysis. 24(7).
Hasanah, U., Fitri, N. L., & Dewi, A. R. (2024). Upaya Pencegahan TBC Anak Melalui Pendidikan Kesehatan Kepada Caregiver. Jurnal Pengabdian Masyarakat Jajama (JPMJ), 3(2), 63. https://doi.org/10.47218/jpmj.v3i2.374
Hermana, S. Y., Rafiyah, I., & Emaliyawati, E. (2020). Strategi Koping Keluarga Pasien Gagal Ginjal Kronis Di Rsud Dr.Slamet Garut. (1).
Khairunnisa, C. A., Lukman, M., & Atmaja, I. A. D. (2026). Strategi Koping dan Faktor yang Memengaruhinya pada Caregiver Informal yang Merawat Anak dengan Kanker. MAHESA : Malahayati Health Student Journal, 6(1), 251–266. https://doi.org/10.33024/mahesa.v6i1.20159
Makmur, S. A., Madania, M., & Rasdianah, N. (2022). Gambaran Interaksi Obat Pada Pasien Gagal Ginjal Kronik Dalam Proses Hemodialisis. Indonesian Journal of Pharmaceutical Education, 2(3), 218–229. https://doi.org/10.37311/ijpe.v2i2.13333
Mangilep, A. U. A., Noer Bahry Noor, Rini Anggraeni, & Adelia L F Sinaga. (2024). Stress Coping Strategies Among Nurses at Hasanuddin University Hospital Indonesia. Media Publikasi Promosi Kesehatan Indonesia (MPPKI), 7(6), 1671–1677. https://doi.org/10.56338/mppki.v7i6.5439
Maryam, D., Wu, L.-M., Su, Y.-C., Hsu, M.-T., & Harianto, S. (2022). The journey of embracing life: Mothers’ perspectives of living with their children with retinoblastoma. Journal of Pediatric Nursing, 66, e46–e53. https://doi.org/10.1016/j.pedn.2022.06.004
Matulessy, T. (2025). The vital role of nurses in alleviating anxiety in hemodialysis patients. Indonesian Journal of Health Services, 2(2), 85-87. https://doi.org/10.63202/ijhs.v2i2.105
Menati, L., Torabi, Y., Andayeshgar, B., & Khatony, A. (2020). The Relationship Between Care Burden and Coping Strategies in Caregivers of Hemodialysis Patients in Kermanshah, Iran. Psychology Research and Behavior Management, Volume 13, 133–140. https://doi.org/10.2147/PRBM.S233103
Mira, Lisa Emilda, & Rosnidar, R. (2025). Pengaruh Pemberian Edukasi Terhadap Beban Caregiver Keluarga Pasien Lansia: The Effect of Providing Education On The Burden of Family Caregivers on Elderly Patients. Journal of Medical Science, 6(2), 161–170. https://doi.org/10.55572/jms.v6i2.226
Nirmalasari, N & Sari, I.W.W. (2025). Caregiver Burden on Caregiver with Chronic Disease. Journal Of Nursing Practice, 8(2), 437–447. https://doi.org/10.30994/jnp.v8i2.509
Nusantara, D. T. H., Irawiraman, H., & Devianto, N. (2021). Perbandingan Kualitas Hidup Antara Pasien Penyakit Ginjal Kronik yang Menjalani Terapi CAPD dengan Hemodialisis di RSUD Abdul Wahab Sjahranie Samarinda: Comparison of Quality of Life Between Chronic Kidney Disease Patients Undergoing CAPD Therapy with Hemodialysis at Abdul Wahab Sjahranie Hospital Samarinda. Jurnal Sains Dan Kesehatan, 3(3), 365–369. https://doi.org/10.25026/jsk.v3i3.299
Prabasari, N. A., Juwita, L., & Marcello, S. A. (2025). Mekanisme Koping Family Caregiver Merawat Lansia Yang Mengalami Proses Penuaan. Malahayati Nursing Journal, 7(7), 2978–2988. https://doi.org/10.33024/mnj.v7i7.18755
Prima, A., Andas, A. M., Wada, F. H., Puspitasari, I., Shoaliha, M., & Ilyas, A. S. (2023). Beban Dan Psychological Well Being Pada Keluarga Pasien Yang Menjalani Hemodialisis. Jurnal Ilmiah Keperawatan IMELDA, 9(1), 1–9. https://doi.org/10.52943/jikeperawatan.v9i1.1196
Renylda, R., Mj, A., & Marinda, N. (2022). Strategi Koping Keluarga Dalam Merawat Pasien Skizofrenia Di Rumah Sakit Jiwa Provinsi Jambi. Jurnal Pustaka Keperawatan (Pusat Akses Kajian Keperawatan), 1(1), 1–7. https://doi.org/10.55382/jurnalpustakakeperawatan.v1i1.164
Santoso, T., & Na’imah, S. (2023). Gambaran beban caregiver dan kualitas hidup pada family caregiver dalam merawat pasien stroke (Overview of caregiver burden and quality of life family caregivers in caring for stroke patients). Jurnal Keperawatan Tropis Papua, 6(1). https://doi.org/10.47539/jktp.v6i1
Sari, I. K., Soelistyoningsih, D., Rifa’i, A., & Qodir, A. (2026). Association between family support and activities of daily living among patients undergoing hemodialysis: A cross-sectional study. 7(2).
Sihaloho, S. M. J. P., Suprapti, F., & Patrisia, I. (2024). Tantangan, Kebutuhan dan Strategi Coping pada Caregiver dalam Merawat Pasien Kanker: Kajian Literatur Sistematik. MAHESA : Malahayati Health Student Journal, 4(9), 3788–3810. https://doi.org/10.33024/mahesa.v4i9.14979
Sitanggang, Y. A., & Lani, T. (2025). Hubungan Strategi Koping Keluarga Dengan Kemampuan Merawat Pasien Gangguan Jiwadi Wilayah Kerja Uptd Puskesmas Astambul. Jurnal Ilmu Kesehatan Insan Sehat, 13(1), 32–43. Https://Doi.Org/10.54004/Jikis.V13i1.303
Surani, V., Elizadiani Suza, D., & Tarigan, M. (2021). The impact of family intervention programs on the caregiver burden of hemodialysis patients. Kontakt, 23(2), 138–145. https://doi.org/10.32725/kont.2021.017
Tahuhá, N., Djamaluddin, N., Yusuf, N. A. R., & Hunowu, S. Y. (2025). Faktor-Faktor yang Berhubungan dengan Beban Keluarga dalam Merawat Lansia yang Menderita Penyakit Hipertensi di Wilayah Kerja Puskesmas Kabila.
Wabula, L. R. (2025). Urgency of equitable access to and quality of hemodialysis services at the community level. Indonesian Journal of Health Services, 2(4), 175-176. https://doi.org/10.63202/ijhs.v2i4.123
Xuan Long, N., Bao Ngoc, N., Thi Phung, T., Thi Dieu Linh, D., Nhat Anh, T., Viet Hung, N., Thi Thang, N., Thi Mai Lan, N., Thu Trang, V., Hiep Thuong, N., Van Hieu, N., Van Minh, H.,. (2021). Coping strategies and social support among caregivers of patients with cancer: A cross-sectional study in Vietnam. AIMS Public Health, 8(1), 1–14. https://doi.org/10.3934/publichealth.2021001
Yun, H., & Ji, S. (2025). Social support and associated factors among caregivers of elderly China: A cross-sectional study. Journal of Community Nursing and Primary Care, 2(1), 24-30. https://doi.org/10.63202/jcnpc.v2i1.103
Downloads
Published
How to Cite
Issue
Section
License
Copyright (c) 2026 Shinta Nur Haliza, Hendy Lesmana, Ayuk Cucuk Iskandar

This work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License.




